Saturday, we had a gathering in Belgium with people who suffer from Ataxia. Els talked about the use of medicinal weed. She, and a few other from the group, use CBD oil. She looked better than ever, so it seems to work 🙂
Bart, someone else from the group, is a real gadgetfreak (according to his girlfriend) his favorite shop is e-bay. He has a ring attached to his mobile phone where he can put his finger in, to prevent him from falling down. The ring comes with a sticker for easy attachement and can be removed (with force) and pasted somewhere else.
On facebook, I found a nice page: ataxia and fitness. There I found some people similar t myself… like Conal.
In his bed, he has so called ‘monkey bars’. They help for transfers and doing some exercises. He invited me to his home… in NEW ZEALAND !
He has a handbike that he uses for leisure, or taking the dog for walk
Rob made a trip to Peru with his girlfriend, both in a wheelchair. He travels a lot. They used there a wheelchair with bars so the local people can pull them every where they want to go, neat!
Thijs is using a cushion to hold his knees and legs in position while he is using his handbike.
He has a velcro to ensure everything stays in the right place.
Fedrico has velcro on his phone so he can ‘paste’ him on his wheelchair… neat idea… but it does not prevent the phone from falling 🙂
Nick is a real fitness boy. He uses Amino x after his workout and has no spasmes at all!
Guy has an electric chair (Revilax) that he uses to watch tv. It makes transfers easy!
My muscles (and spasmes) keep my legs straight. To prevent this, I have a special footrest.
the edge in the front keep my feet in and the ‘wings’ on the side prevent my feet from turning.
Thijs uses a hammer toe cushion in his shoes to prevent his toes from curling.