1 of 50,000 people has Friedreich’s ataxia*, so have I…

For now, there is no known cure.

We all have the same problems. I am constantly seeking solutions for some of these specific problems. Other people with this condition are doing this … It would be nice if we could help each other.


I don’t want to compare abilities at all! We all have this stupid disease…lets make the best of it.

This is not going to be a place for complaining, rather a place with solutions to make our life easier and more pleasent.

We can learn from each other!

*A genetic disorder that damages the nervous system and affects the muscles. It affects coordination the limbs, the small motoric skills, the speech,…